Hi my name is Angel Hartfield i'm a single mom of two beautiful girls Tanayshiana 9 years and Kierra 2 years old. Now Kierra was born on September 11, 2002 she was a healthy 8lbs 4ozs.

NaNa was happy to have a little sister. Till the day I brought her home from the hospital thats when the change started in our lives.

All Kierra would do is cry at night all day then i finally said somethings wrong with my baby. I took her to the hospital she was one month old at the time she stayed in the hospital for about five days getting test ran on her thet didn't find anything the doctors told me that it was colic. After that she was still crying alot but nothing I couldn't handle because i was use to it. Throughout her life she had multiple ears infections which lead her to get ear tubes put in at the age of 11 months. Now up until then she had all her milestones wasn't to worried about anything being delayed.

On September 11th 2003 Kierra had her first birthday she wasn't walking at the time but she did began to walk  two weeks after she turned 1. Around the age of 14 months Kierra was up and walking,falling the normal things that kids do when they start to walk. Then at the age of 18 months she was still doing the same thing and I use to just watch her walk and then I began to say again there's something wrong with my baby i took her to her primary doctor who also thought something was wrong with the way Kierra walked so she referred me to an orthapedic which looked at her for about 15 minutes sent me on my way with "she's just flat footed she'll grow out of it" I was so mad when they told me that but I didn't stop there I got her evaluated through a program called early intervention which noticed my baby had problems with walking and speech. So in April 2004 she began therapy for both.

Now along with these problems around October 2004 Kierra got worse with walking she stopped completely so back to the doctor we went she was referred to an neurologist. He recommended some nerve test that came back normal the he said we should do an MRI which we did November 25th 2004. When i received those results that when they notice the white matter around Kierra's brain.

So the next step was to have Kierra admitted into the hospital on December 13th 2004 so they can run test on her she stayed in the hospital for 3 days for this to happen. The doctors thought it was MLD but was not sure. When it was time for the results boy was i mad the hospital didnt get it out in time so Kierra had to get the test for MLD a second time cause the first was a failure. The second time i was even more mad they did not get enough blood.

Boy what was going to happen to my baby was all i could think so on January 24th 2005 they did another test which went through and on February 4th 2005 I received a phone call from Kierra's doctor that she indeed did have MLD it was devastating but what can i do. I had already done my research and knew in my heart that my little girl had this horrible disease. My hope now is that if not before it takes her life but to find a cure before it takes the life of another beautiful innocent childs life.

God Bless any and everyone who will or have ever gone through this ordeal my heart goes out to all.