Logan Christopher Nobis was born Jan.,1 2004. He was a normal and very healthy baby. He met all his milestones on time, if not early.

When he was 18 months old, he begain to fall alot when he would walk. We took him to his pediatician to see what was wrong, he said he had weak leg muscles and would grow out of it. Then when he turned two, he was still not walking well. Again we took him to the ped. and he said again, he will grow out of it. Then in July when Logan was 30 months we took him back because he begining to fall 20-30 times a day. We thought he may need orthodticts. The ped. sent us to a bone specalist. Three weeks later we saw her and she thought Logan may have celebral palsey and suggested we see a neurologist. They set the appointment up in Dec. Being scared to death I called the neuologists office everyday untill they got us in. So finally in Aug. we had the MRI. When the results came back the neurologists said he needed bloodwork before he would tell us what was wrong with Logan.

So three more weeks passed than we found out. Our happy lives were over on Sept. 12th 2006. He was diagnosed the late infantile MLD.

A week later we went to Childrens Mercy Hospital in Kansas City to see Dr. Charlie Peters. They did all sorts of testing to see if he would be able to have a bone marrow transplant. But tests came back that he was too far along.

Then we talked to Dr. Kurtzberg at Duke University and decided to go there to see if he could have a stem cell transplant. We went to Duke in Oct. They did all sorts of testing there also, but it came back the same. He was too far progressed and it would not benefit Logan to have the transplant.

But we did talk to Dr. Escolar who talked about enzyme replacement therapy being done in Denmark next year. So immediately we got on her list to get us in the trial. But sadly today we found out that the company in Denmark was only accepting patients in Europe.

That is Logan's story so far. we are still waiting for the miracle cure!

With Love,

Libby